Happy PSC Awareness Day!
It’s been a while since I’ve shared on my blog and what a better reason to post?
For those of you just finding this blog for the first time, Primary Sclerosing Cholangitis (or PSC) is a chronic disease that affects the bile ducts in the liver. Essentially, the bile ducts become inflamed which results in scarring and narrowing of the ducts. This leads to blockages which means bile is not able to flow properly. Symptoms often include itching, jaundiced skin or eyes, nausea, abdominal pain, and/or fatigue. Ultimately the disease damages the liver and many patients eventually require a transplant.
I was diagnosed in 2016 and have already had my fair share of ups and downs with the disease in the past two years. I’ve captured my entire experience in this blog and you can read earlier posts if you’re interested.
The goal of PSC Awareness Day is to help others learn about the rare disease and raise awareness of the importance of organ donation. If this is the first you’re hearing about PSC, I encourage you to take a few minutes to watch this quick video to learn more.
As for how I’m doing recently? The past few months have been uneventful and things have been pretty normal with no or mild PSC symptoms. Some of my liver bloodwork results were even in the normal range for a short while! My Ulcerative Colitis began acting up again a few weeks ago, so I’ll likely be starting a new medicine to try to get that under control. I will provide an update if anything changes.
PSC Awareness Day (Not So) Fun Fact: More than 80% of PSC patients also have Ulcerative Colitis or Crohn’s Disease. I’m one of those lucky people! 😝
As always, thanks for joining me on this journey!
~Liver Life to the Fullest