For those of you binge reading my “backstory” posts, we’ve finally reached where I’m at in my journey today.
Since my hospitalization in October 2016, I’ve been feeling pretty good, but have had a few bouts of symptoms (itching/nausea/fatigue) off and on. There are days when I find myself sitting in meetings at work pushing through the nausea or days that I can’t keep my eyes open due to the insomnia. Here’s a funny list of things PSCers can relate to that you might enjoy and give you a glimpse of my daily life.
With the new mantra to “liver life to the fullest,” I’ve been trying to stay active and discover ways to better manage my symptoms. I continue to play basketball in a weekly league which seems to give me even more energy. I’ve been travelling and continue to make plans for the future to explore new places. In addition, I’ve been testing out a gluten free diet to see if helps alleviate any of my symptoms. It’s still too early to tell, but I have been feeling really good the last month of the new diet so perhaps more to come on that.
I recently met with my Gastro/Heptologist and the biggest thing I took away was that I’m in the very early stages of PSC still. My liver function is still really good and only the ducts are affected at this time. And for those nosy family members reading this, the doctor was also encouraging and hopeful that I can have more kids someday. 😉
Today I feel like PSC is manageable and I can continue to live a full life. Sure, there may be days where I feel crummy and don’t want to get out of bed. That’s just a reminder that we don’t always know what someone is going through, so be nice to one another and provide some encouragement.
Thanks for joining me on this journey.
~Liver Life to the Fullest